What it's like to hear you have Multiple Sclerosis

Aside from feeling like you were kicked in the groin, you have to come to terms with knowing your chances of being stuck in a wheelchair shitting yourself suddenly became exponentially more realistic.
You've been giving a life altering diagnosis.
Your neurologist will tell you their goal is to keep you off disability for as long as possible.
They will talk to you about treatment options.
You'll be getting multiple MRIs, Brain and Spine, with and without contrast every 6 months for the rest of your life.
You'll start to question everything.
What did I do wrong? What could I have done differently? Is this a long term side effect of long covid? Is this this caused by the flu vaccine, the covid vaccine?
You name it, you question it.
Reality goes out the door, and depression wants to take it's place.
You grieve.
You go through phases where you don't want anyone to know and you want to talk to everyone about it.
And you grieve some more until you finally come to terms knowing the diagnosis is permanent.
Then live goes on.
If you enjoyed this post, consider supporting me in Walk MS.
Read Next
All Stories →Forged in the Fires of Mt. Doom

I wasn't literally forged in the fires of Mt. Doom. But you’d have a hard time convincing me the burns weren't real.
I’ll never be who I was, but I’ll always be who I am.

Chronic illness is a series of subtractions. Multiple Sclerosis takes things from you. It takes your gait, your vision, your predictable mornings, and your physical ease. You can’t go back to the person you were before the 'Phantom Fire' and the 'Double Vision' became your daily reality.
